Another great appointment!!

 I had my weekly appointment yesterday and had bloodwork, checkup with the NP Laura, and then chemo afterwards. She said my hemoglobin was a 9.9 and that is considered low but I have tolerated it being much lower in the past so she wasn't too concerned. Next week I won't have an appt. with her or Dr. V but I do have to go in for a check on my counts and then possibly go to Methodist for a type and cross and go back the next day for a blood and platelet transfusion. I have a feeling I'll have to go because my counts aren't going to improve any after having chemo yesterday and I can tell I'm starting to slowly feel more and more tired. With my counts being low though I just need to be more cautious with watching for infections and any symptoms of being sick.

She told me I was showing signs and symptoms of my body going thru withdrawl from when I stopped taking the steroid Dexamethasone. So this time when I go to stop taking it I'll be weaned off of it instead of stopping it cold turkey. I can't believe how bad it made me feel last time! So hopefully this will help.

I have a followup appointment with my Neurologist, Dr. Dong, on August 8th in Peoria. He's the doctor I've had since my 5 seizures in the hospital on Christmas Eve. Thankfully I haven't had any seizure activity since that day and they know what was causing them (my body did not like the chemo drug Asparaginase that I had been on). And then I have my appointment with Laura on the next day (the 9th) and will be having bloodwork and chemo, and then go to Methodist for my 8th spinal tap. That will be a very long day for me.

I've been having acid reflux off and on in the last week or so. I read online it could possibly be related to this steroid med I'm on so I'll wait and just see how it is over the weekend and if it's still bothering me than I'll call beginning of the week and see what they have to say. But for now it's not too bad.

I got a wonderful e-mail today from a friend of Justin's Grandmother and it made me feel really good. Carol said she just recently started reading my blog and was very happy to hear how good things are going for me and to keep my head up. It definitely brightened my day and brought a smile to my face!   : )


I'm going to watch some tv and then head to bed. I'm hoping for a good nights sleep tonight, I've been having a hard time with sleep for awhile now (another side effect of the steroid). I have some stuff I'm hoping to get accomplished around here tomorrow so I hope I feel up to it. Kids are doing great here at home and I think we're all adjusting to them being out of daycare and being back at home all day!

Oh, before I forget - Aly had her 4 year checkup with Dr. Beaty yesterday morning. He's a great doctor and we love him being the kids' pediatrician! He said Aly is completely on track for everything developmentally and said she is in the 5th percentile for her height at 3 feet 2 inches and she is in the 20th percentile for her weight at 33 pounds. He said she's just very petite. She did great there and we were so glad to hear such a great report.

 

Good night!    Kim