Finally a new post!

 Finally a new post… I’m sorry for the lack of updates recently. It’s seems like we’ve just been so busy lately.

Let’s see where I left off…

 On Friday June 3^rd I had my regular appt. and chemo. I saw a Nurse Practitioner that day and my hemoglobin was 7.1. I felt fine but my NP was concerned (they recommend getting a transfusion at an 8). She knows I always go to Methodist but that they do not like doing a type and cross and transfusion on the same day there. Finally she agreed to let me go ahead and just have the type and cross done that day after my spinal tap and I would go in first thing Monday morning for the blood transfusion.

 After my chemo there we left and went to Methodist for the spinal tap. Like the others I’ve had, they let Justin stay in there until right before they start the procedure. He left the room and I laid on the surgical table waiting for Dr. Namaslaski (I know I’m spelling his name wrong) and I was so nervous on top of being exhausted and ended up falling asleep on the table. Normally the doctor will come right in but this time he got caught in a surgery so after being asleep for awhile my nurse Dana came in and woke me and told me it would be just a little bit longer. No idea how in the world I slept in there. You should have seen the position they had me in on that table! From my 2 epidurals when having the kids and the 5 previous spinal taps I’ve had they had a pretty hard time getting my back numb. Finally it was numb and Dr. N started the procedure. It went just fine and afterwards I went to recovery for an hour to lay still on my back. Afterwards we stopped and picked up Chili’s to go and went home and I rested for the rest of the day. I was so worried I would end up with a headache from it and so I did all I could to try and prevent it.

Saturday morning we woke up and went over to Jon and Lisa’s for a pool party and to grill out. It was a really nice day!

Monday morning we woke up and got the kids ready for daycare. Justin always goes with me when I have to go to the hospital for transfusions to keep me company since I’m there for hours. We got the kids ready and I walked down the stairs and into our laundry room to grab something and I thought I was going to pass out – literally. I saw black spots and started sweating profusely and it took all I had in me to make it back to the stairs to sit down. I felt awful. I sat there for a little bit and then ended up getting sick. Over and over again. Finally I made it out to the car, we dropped the kids off, and then we went and had my port accessed at Dr. Vukov’s and then off to Methodist. I was feeling so bad I even had a hard time walking and needed a wheel chair. I just can’t get over how bad I felt. After spending about 6 hours at Methodist we left and came home. Later that day I felt great from getting the much needed blood!  

The week went by pretty quick. I worked on laundry and tried to get some stuff accomplished around the house. I ran some errands and felt pretty good. On Thursday Justin mentioned to me that Wednesday had been 6 months since my diagnosis. I didn’t even think about it on Wednesday. It’s been a long 6 months but I’m very thankful to be where I am today.

So today is Saturday. We woke up and it was gloomy out. We had plans to go to the Turkey Festival in Tremont and I was worried it would rain and we were going to miss out. After the kids taking naps the sun came out and we headed out. We met up with Jon, Lisa, and Olivia and had a great time. The girls went on some kids rides together and had so much fun. And Connor just watched from the stroller. We enjoyed turkey and strawberry shortcake and just had a great day.

Tomorrow we’re finally celebrating Connor turning two. We’re having a very small get together but it’s important we celebrate our sweet boy turning two!

Monday I have chemo again and an appt. with a NP. I plan on discussing my neuropathy with her, it’s been really bad all week. Especially in my fingers and it’s all due to the chemo drug Vincristine. This will also be my last chemo in this cycle. I’m not sure what my next cycle will consist of yet. I’ll find out soon though. In the middle of this month I do know I will have a bone marrow biopsy – I’m very nervous about that but trying to keep it off my mind for now.

Off to bed now. Busy day tomorrow!